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The Voice of 12,000 Patients

Experiences and Expectations of Rare Disease Patients on Diagnosis and Care in Europe/A report based on the EurordisCare2 and EurordisCare3 Surveys

The Voice of 12,000 Patients
The Voice of 12,000 Patients The Voice of 12,000 Patients
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'Anna Kole: The Voice of 12,000 Patients ' összes példány
Kiadó: Eurordis
Kiadás helye:
Kiadás éve:
Kötés típusa: Ragasztott papírkötés
Oldalszám: 324 oldal
Sorozatcím:
Kötetszám:
Nyelv: Angol  
Méret: 24 cm x 17 cm
ISBN: 978-2-95303-18-1-2
Megjegyzés: További kapcsolódó személyek a könyvben. Színes ábrákkal, térképekkel.
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Eli^^lPi
Healthcare authorities need quantified data to make public health decisions. To go beyond patients' anecdotes and investigate experience-based opinions in a quantitative way, the EurordisCare2 and EurordisCare3 surveys were conducted to contribute to shaping patient-centred public health policies by describing and comparing patients' experiences and expectations regarding rare disease diagnosis and care for a variety of significantly relevant rare diseases across Europe. Accompanied by figures, illustratioiis, and patient testimonies, the survey findings are presented in a user-friendly manner to serve as an information and advocacy tool for patients, patient organisations, health professionals, and health authorities. With its publication on Rare Disease Day 2009, this book not only encourages media attention and subsequent communication of the issues to the general public, but also helps illustrate state-of-the-art-pubUc health solutions to reducing delays in diagnosis... Tovább

Fülszöveg


Eli^^lPi
Healthcare authorities need quantified data to make public health decisions. To go beyond patients' anecdotes and investigate experience-based opinions in a quantitative way, the EurordisCare2 and EurordisCare3 surveys were conducted to contribute to shaping patient-centred public health policies by describing and comparing patients' experiences and expectations regarding rare disease diagnosis and care for a variety of significantly relevant rare diseases across Europe. Accompanied by figures, illustratioiis, and patient testimonies, the survey findings are presented in a user-friendly manner to serve as an information and advocacy tool for patients, patient organisations, health professionals, and health authorities. With its publication on Rare Disease Day 2009, this book not only encourages media attention and subsequent communication of the issues to the general public, but also helps illustrate state-of-the-art-pubUc health solutions to reducing delays in diagnosis and improving access to care in the context of two major European Union policy developments: the European Commission Communication on a European Action in the Field of Rare Diseases, and the Directive on the application of patients' rights in cross-border health care. Vissza

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The Voice of 12,000 Patients The Voice of 12,000 Patients The Voice of 12,000 Patients
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